1/7/05 3 Days Post Transplant

Once again I have survived another day with no issues. I received my 2nd treatment of anti-rejection medication which is actually an old chemotherapy they use to immuno-supress my system for the near term. It is a 15 minute IV drip which today included a 3 hour wait since the infusion room was backed up. Of course this did not irritate me at all waiting 3 hours for 15 minutes of treatment so I had patient relations come down and speak with me. They know this is a problem and need people like myself to speak up so that they can convince the top brass that changes need to be made. I was not the first to complain and will not be the last. Overall, Dana Farber has been a great place for treatment. The staff is fantastic and responsive at Dana Farber and the facility is a friendly, warm environment most of the time. Unfortunately cancer is a growing business and top brass has to have some concern about the patients quality of life issues. I also will be writing to The Brigham & Women's Head of Patient Relations since I was in an isolation room due to concerns about immunosuppression and catching colds, infections and so forth from others yet every day a few times a day the smell of diesel fumes from delivery trucks circulated my room. Must be good for ones health. Evidently this has been a problem for some time due to the ventilation system being on the side of the building where they get deliveries and these trucks are not allowed to idle during their deliveries but still do.